Plenary Session Recordings

The PAME meeting recordings and speaker slides are available below. We also encourage you to visit the virtual PAME Memory Wall that honors loved ones lost to an epilepsy-related cause. It is the smiling faces and sweet memories that remind us of the urgency of our work to understand and prevent epilepsy-related mortality. View the PAME Memory Wall.

Opening Sessions

Meeting in the middle? Bidirectional lessons for SUDEP from basic and clinical research today

The basic science plenary session will cover lessons from either the basic science side or clinical side and evaluate how well they translate from bench to bedside and back. We will consider what else needs to be known to make smooth translation, with a focus on spreading depolarization/circuit mechanisms, biomarkers (including post ictal generalized EEG suppression and heart rate variability), and neurotransmitters. A panel discussion and questions from the audience will close the session.

Moderators:

  • Gordon Buchanan, MD, PhD, University of Iowa
  • Franck Kalume, PhD, Seattle Children’s Research Institute

Faculty (click on name to view slides):

Studying SUDEP – best practices for epidemiologic and intervention studies

This plenary session will explore important methodological considerations for studying SUDEP, including intervention trial design, selecting a study population, and appropriate outcomes and biomarkers. Speakers will also explore efforts to use data from electronic medical records to study SUDEP, as well as the latest in SUDEP surveillance. A panel discussion and questions from the audience will close the session.Moderator:

  • Elizabeth J. Donner, MD, MSc, FRCPC, University of Toronto

Faculty (click on name to view slides):

Navigating the psychological impacts of epilepsy on the individual & family – Living with uncertainty and surviving loss

This session will discuss the mental health challenges of living with epilepsy, as well as the challenges associated with the complicated grief of losing a loved one. New research will be presented that sheds light on understanding grief, along with improved tools to better diagnose and manage anxiety and depression and reduce risk of suicide. A panel discussion will close the session with diverse perspectives on the need for increased focus on mental health within the epilepsy community.

Moderators:

  • Gardiner Lapham, RN, MPH, BAND Foundation
  • Tom Stanton, Danny Did Foundation

Faculty (click on name to view slides):

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