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Working together to understand & prevent epilepsy mortality

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Working together to understand & prevent epilepsy mortality

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Working together to understand & prevent epilepsy mortality

Our Mission

PAME’s mission is to convene, educate and inspire all stakeholders – from the bereaved to those living with epilepsy, to health care professionals, advocates, clinical and basic scientists, and death investigators – to promote understanding and drive prevention of epilepsy-related mortality.

Upcoming Events & Webinars



SUDEP Biomarker Challenge: What Did We Learn?

07/13/2022 | 1:00 pm EST - 2:00 pm EST

Between 2015-2020, the Epilepsy Foundation hosted a $1,000,000 SUDEP Biomarker Challenge that asked researchers and innovators to find predictive biomarkers with which to identify people at risk for SUDEP or life-threatening seizures which compromise cardiac or respiratory function. This webinar will review the proposed areas of work, discuss what was learned from the Challenge, and the future planned steps. Speakers will include Drs. Jeff Buchhalter (pediatric epileptologist and Adjunct Professor of Pediatrics, University of Calgary), Brandy Fureman (Chief Outcomes Officer, Epilepsy Foundation) and Kathleen Farrell (Vice President of Public Health and Outcomes, Epilepsy Foundation).

PAME Conference 2022

12/01/2022

Partners Against Mortality in Epilepsy (PAME) is a powerful, growing collaboration among health care providers, clinical researchers, basic scientists, public health officials, patient advocates, caregivers, bereaved families, and people living with epilepsy. This range of stakeholders come together with a common goal of improving our understanding of and working to prevent epilepsy-related forms of mortality, including suicide, accidents, and status epilepticus, and with a strong focus on Sudden Unexpected Death in Epilepsy (SUDEP).

View Events & Webinars


Mortality Issues

People with epilepsy are 3 times more likely to die prematurely than people without epilepsy. Many of these deaths could be prevented. Learn more about the leading causes.

Resources

PAME’s resource hub seeks to centralize updated information and link to partner organizations for specific content. Search here for non-profit partner resources, practice guidelines, educational materials, bereavement resources, publications, funding opportunities and more.

Recent News

Explore recent publications, news and updates.

Epilepsy Mortality: The Unseen and Unknown

01/18/2022 | Neurology | Orrin Devinsky

In this issue of Neurology®, Klovegard et al.1 examine epilepsy mortality using a wide-angle lens, looking beyond sudden unexpected death in epilepsy (SUDEP) to other direct and indirect causes of epilepsy-related deaths. They found that most deaths in children and adults <50 years old were directly or indirectly related to epilepsy. Thus, epilepsy may be the leading...

All News

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