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Working together to understand & prevent epilepsy mortality

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Working together to understand & prevent epilepsy mortality

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Working together to understand & prevent epilepsy mortality

Our Mission

PAME’s mission is to convene, educate and inspire all stakeholders – from the bereaved to those living with epilepsy, to health care professionals, advocates, clinical and basic scientists, and death investigators – to promote understanding and drive prevention of epilepsy-related mortality.

Prevention Toolkit

The Preventing Epilepsy Deaths Toolkit is a practical resource for families and clinicians. It provides information and training videos for health care providers on how to assess risk and educate patients and their families. It also offers patient education information including a handout and a preparing for an office visit form.

Watch our recent webinar and access the toolkit through the link below.

View Webinar and Toolkit


Mortality Issues

People with epilepsy are 3 times more likely to die prematurely than people without epilepsy. Many of these deaths could be prevented. Learn more about the leading causes.

Resources

PAME’s resource hub seeks to centralize updated information and link to partner organizations for specific content. Search here for non-profit partner resources, practice guidelines, educational materials, bereavement resources, publications, funding opportunities and more.

Stay In Touch

JOIN the PAME community! Sign up to receive updates and information on events.

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