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Working together to understand & prevent epilepsy mortality

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Working together to understand & prevent epilepsy mortality

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Working together to understand & prevent epilepsy mortality

Our Mission

PAME’s mission is to convene, educate and inspire all stakeholders – from the bereaved to those living with epilepsy, to health care professionals, advocates, clinical and basic scientists, and death investigators – to promote understanding and drive prevention of epilepsy-related mortality.

New Resources

State-level Policy Interventions to Prevent SUDEP & Other Epilepsy-Related Deaths

Toolkit for Advocates


Preventing Epilepsy Deaths Toolkit: Practical educational resource for health providers and families

Toolkit for Clinicians & Families


Mortality Issues

People with epilepsy are 3 times more likely to die prematurely than people without epilepsy. Many of these deaths could be prevented. Learn more about the leading causes.

Resources

PAME’s resource hub seeks to centralize updated information and link to partner organizations for specific content. Search here for non-profit partner resources, practice guidelines, educational materials, bereavement resources, publications, funding opportunities and more.

Stay In Touch

JOIN the PAME community! Sign up to receive updates and information on events.

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