Our Mission
PAME’s mission is to convene, educate and inspire all stakeholders – from the bereaved to those living with epilepsy, to health care professionals, advocates, clinical and basic scientists, and death investigators – to promote understanding and drive prevention of epilepsy-related mortality.
New Resources
State-level Policy Interventions to Prevent SUDEP & Other Epilepsy-Related Deaths
Preventing Epilepsy Deaths Toolkit: Practical educational resource for health providers and families
Toolkit for Clinicians & Families
Mortality Issues
People with epilepsy are 3 times more likely to die prematurely than people without epilepsy. Many of these deaths could be prevented. Learn more about the leading causes.
Resources
PAME’s resource hub seeks to centralize updated information and link to partner organizations for specific content. Search here for non-profit partner resources, practice guidelines, educational materials, bereavement resources, publications, funding opportunities and more.
Stay In Touch
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