Upcoming Events

This year’s PAME conference will be held in Orlando, Florida, on Thursday, November 30^that the Rosen Centre Hotel. We will also hold a special session for bereaved families and advocates on Wednesday, November 29^th, the day before the conference. A welcome reception for all conference attendees follows that evening. Registration opens later this summer!

In recent years, there has been growth in the number of organizations created in memory of someone who has died from SUDEP. Join us for a special conversation with representatives from family-led organizations that are urgently working to prevent epilepsy-related deaths. What are their biggest priorities, where can collaboration speed progress, and how can we learn from each other? Each organization will give a brief overview of their history and mission, followed by a Q&A session.