Save the date for the 2023 PAME Conference!


This year’s PAME conference will be held in Orlando, Florida, on Thursday, November 30that the Rosen Centre Hotel. We will also hold a special session for bereaved families and advocates on Wednesday, November 29ththe day before the conference. A welcome reception for all conference attendees follows that evening. Registration opens later this summer!

It takes a village: How family-led organizations are changing the face of SUDEP prevention

10/05/2023 | 3:00 pm EST - 4:00 pm EST

In recent years, there has been growth in the number of organizations created in memory of someone who has died from SUDEP. Join us for a special conversation with representatives from family-led organizations that are urgently working to prevent epilepsy-related deaths. What are their biggest priorities, where can collaboration speed progress, and how can we learn from each other? Each organization will give a brief overview of their history and mission, followed by a Q&A session.