Past Webinars

International Epilepsy Awareness Day 2023: Understanding the Global Burden of Epilepsy Mortality and the Importance of Reducing Stigma in Low Income Countries Feb 22 at 1:00pm ET Join PAME for this webinar calling attention to International Epilepsy Awareness Day 2023 and shining a light on the risks associated with epilepsy in lower income countries. Dr. Arjune Sen from the University of Oxford will provide an overview of epilepsy mortality globally. Action Amos, Vice President for Africa for the International Bureau for Epilepsy, will speak about how people with epilepsy in Africa face stigma and greater risk for mortality. A discussion will follow on how we can work to promote change.

This webinar will feature Monica Lemmon, MD, Assistant Professor of Pediatrics within the Division of Pediatric Neurology at DUKE, speaking about the development of a SUDEP conversation guide.

Between 2015-2020, the Epilepsy Foundation hosted a $1,000,000 SUDEP Biomarker Challenge that asked researchers and innovators to find predictive biomarkers with which to identify people at risk for SUDEP or life-threatening seizures which compromise cardiac or respiratory function. This webinar will review the proposed areas of work, discuss what was learned from the Challenge, and the future planned steps. Speakers will include Drs. Jeff Buchhalter (pediatric epileptologist and Adjunct Professor of Pediatrics, University of Calgary), Brandy Fureman (Chief Outcomes Officer, Epilepsy Foundation) and Kathleen Farrell (Vice President of Public Health and Outcomes, Epilepsy Foundation).

Sudden Unexpected Death in Epilepsy (SUDEP) affects approximately 1 in 1,000 people with epilepsy, regardless of age ^1,2. While lack of seizure control and seizure severity are the most common concerns for increased risk of SUDEP, there is also a concern that certain genetic mutations may increase SUDEP risk.     

Devices that alert to seizure activity are in their early stages, but there is already a clear demand for their use by patients and caregivers. This webinar will assess the pros and cons of the current state of seizure detecting devices; provide objective considerations for patients and caregivers who are selecting a device; and offer information on the future direction of devices, with a preview of technologies in the pipeline.

Join SUDEP researcher and epilepsy provider, Dr. Orrin Devinsky, as he moderates a session with leading international researchers on biomarkers and how close we really are to understanding what puts an individual at greater risk for SUDEP.

The Center for SUDEP Research (CSR) was NINDS' most significant investment to date focused on advancing understanding of SUDEP. As a large, 5-year, multi-disciplinary, and multi-center study - the CSR promised to catalyze research on SUDEP and dramatically enhance our understanding of this poorly understood and devastating phenomenon. What did it achieve and where do we go from here?

Sudden unexpected death in epilepsy (SUDEP) is the leading cause of death in patients with refractory epilepsy. Though we are learning a great deal about SUDEP, it still occurs far too often. It is recognized that SUDEP happens frequently during the night, possibly during sleep. Understanding the connection between night, sleep, and SUDEP may provide clues to improving preventive measures. This webinar reviewed the latest in basic science and clinical research on sleep, circadian rhythms, and SUDEP.

This PAME webinar explored racial, ethnic, economic, and geographic differences in epilepsy-related mortality in the U.S. and globally.  Where can we look to make progress?  The following panelists will shared the latest science as well as personal experiences to help inform this important topic.

This PAME webinar explored racial, ethnic, economic, and geographic differences in epilepsy-related mortality in the U.S. and globally.  Where can we look to make progress?  The following panelists will shared the latest science as well as personal experiences to help inform this important topic.