SUDEP Biomarkers: How Close Are We?

03/29/2022 | 4:00 pm EST - 5:00 pm EST

Join SUDEP researcher and epilepsy provider, Dr. Orrin Devinsky, as he moderates a session with leading international researchers on biomarkers and how close we really are to understanding what puts an individual at greater risk for SUDEP.

Key Learnings and Next Steps From the NIH funded Center for SUDEP Research

10/25/2021

The Center for SUDEP Research (CSR) was NINDS' most significant investment to date focused on advancing understanding of SUDEP. As a large, 5-year, multi-disciplinary, and multi-center study - the CSR promised to catalyze research on SUDEP and dramatically enhance our understanding of this poorly understood and devastating phenomenon. What did it achieve and where do we go from here?

Sleep, Night, and SUDEP

07/16/2021

Sudden unexpected death in epilepsy (SUDEP) is the leading cause of death in patients with refractory epilepsy. Though we are learning a great deal about SUDEP, it still occurs far too often. It is recognized that SUDEP happens frequently during the night, possibly during sleep. Understanding the connection between night, sleep, and SUDEP may provide clues to improving preventive measures. This webinar reviewed the latest in basic science and clinical research on sleep, circadian rhythms, and SUDEP.

Understanding Disparities in Epilepsy Mortality: Global and national perspectives

05/18/2021

This PAME webinar explored racial, ethnic, economic, and geographic differences in epilepsy-related mortality in the U.S. and globally.  Where can we look to make progress?  The following panelists will shared the latest science as well as personal experiences to help inform this important topic.

Grief and Death in Epilepsy: Learning From Loss

05/18/2021

This PAME webinar explored racial, ethnic, economic, and geographic differences in epilepsy-related mortality in the U.S. and globally.  Where can we look to make progress?  The following panelists will shared the latest science as well as personal experiences to help inform this important topic.