Recorded October 5, 2023
In recent years, there has been growth in the number of organizations created in memory of someone who has died from SUDEP. Join us for a special conversation with representatives from family-led organizations that are urgently working to prevent epilepsy-related deaths. What are their biggest priorities, where can collaboration speed progress, and how can we learn from each other? Each organization gave a brief overview of their history and mission, and it was followed by a Q&A session moderated by PAME Chair, Gardiner Lapham.
Speakers:
- Tom Stanton, Danny Did Foundation
- Edana Perry, Kayla Ross Perry Memorial Foundation
- Heather Kun, The Cameron Boyce Foundation
- Paul Robinson, Jenna Robinson Charities
This webinar was planned as part of PAME’s 2023 SUDEP Awareness Day Activities.
PAME thanks SK Life Science for their generous support of its 2023 SUDEP Awareness Day activities.