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Assessment of an under-mattress sensor as a seizure detection tool in an adult epilepsy monitoring unit

01/13/2023 | Seizure

Objective: Because of SUDEP (Sudden and unexpected death in epilepsy) and other direct consequences of generalized tonic-clonic seizures, the use of efficient seizure detection tool may be helpful for patients, relatives and caregivers. We aimed to evaluate an under-mattress detection tool (EMFIT®) in real-life hospital conditions, in particular its sensitivity and false alarm rate (FAR), as...

Communication about sudden unexpected death in epilepsy: Understanding the caregiver perspective

01/16/2023 | Annals of the Child Neurology Society

Objective We aimed to characterize (1) the caregiver experience of learning about sudden unexpected death in epilepsy (SUDEP), and (2) caregiver preferences for SUDEP risk disclosure. Methods We distributed a 24-question survey to caregivers of children with epilepsy. Free text questions were analyzed using a rapid qualitative analysis approach. Results Two hundred and twelve caregivers...

Prospective, longitudinal, multicenter study on the provision of information regarding sudden unexpected death in epilepsy to adults with epilepsy

12/22/2022 | Epilepsia

Objective Despite increased awareness of the serious epilepsy complication sudden unexpected death in epilepsy (SUDEP), a substantial population of people with epilepsy (PWE) remain poorly informed. Physicians indicate concern that SUDEP information may adversely affect patients’ health and quality of life. We examined SUDEP awareness and the immediate and long-term effects of providing SUDEP information...

Adherence patterns in antiseizure medications (ASM) influencing risk of Sudden Unexplained Death in Epilepsy (SUDEP): a data linkage study using dispensed prescriptions

01/08/2023 | Epilepsia

Objective: Medication adherence is considered an important risk factor for Sudden Unexpected Death in Epilepsy (SUDEP) although measurement accuracy is difficult. Using prescription dispensations, this study aims to estimate antiseizure medication (ASM) adherence and identify adherence patterns that influence epilepsy mortality. Methods: Retrospective cohort study of tertiary epilepsy outpatients seen at St Vincent’s Hospital (Melbourne), Victoria, Australia,...

Perinatal risk factors for SUDEP: A population-based case-control study

07/02/2022 | Epilepsia

Sudden unexpected death in epilepsy (SUDEP) is a leading epilepsy related cause of death. Researchers have highlighted the similarities between SUDEP and Sudden infant death syndrome (SIDS) but perinatal risk factors such as those identified for SIDS, have not been assessed previously for SUDEP. We carried out a population-based case-control of 58 SUDEP individuals and...

Predictive Modeling of Suicidal Ideation in Patients with Epilepsy

06/11/2022 | Epilepsia

The prevalence of suicide in the United States has seen an increasing trend and is responsible for 1.6% of all mortality nationwide. While suicide has the potential to broadly impact the entire population, it has a substantially increased prevalence in persons with epilepsy (PWE) despite many of these individuals consistently seeing a health care provider....

No Time to Die - Avoidable Death in Epilepsy

04/12/2022 | Epilepsy Currents

This commentary published April 12, 2022 in Epilepsy Currents discussed publications related to two national studies conducted in Scotland and Denmark. Learn more

Leveraging electronic patient diaries in SUDEP risk evaluation

05/11/2022 | Epilepsy Research

Abstract Objective: Our aim was to describe the risk factors known to be related to sudden unexpected death in epilepsy (SUDEP) that can be extracted from patients that utilizes an online seizure diary tool (SeizureTracker™). Method: We conducted a descriptive analysis of SeizureTracker™ users across factors relevant to SUDEP risk. We also compared our app-using cohort to...

Addressing and Reducing Epilepsy-Related Deaths featuring Gardiner Lapham

03/02/2022 | Cure Epilepsy

Discussing mortality in epilepsy can be a major source of discomfort for people living with epilepsy, their families, and caregivers. Consequently, providers sometimes avoid discussing the subject, and those with epilepsy and their loved ones are not given valuable information to help them make informed choices about care, wellness, and lifestyle. Additionally, epilepsy-related deaths are...

Counseling about sudden unexpected death in epilepsy (SUDEP): A global survey of neurologists' opinions

01/27/2022 | Epilepsy and Behavior

Abstract Objective: To investigate the opinions and attitudes of neurologists on the counseling about sudden unexpected death in epilepsy (SUDEP) worldwide. Methods: Practicing neurologists from around the world were invited to participate in an online survey. On February 18th, 2021, we emailed an invitation including a questionnaire (using Google-forms) to the lead neurologists from 50 countries. The...

Epilepsy-Related Mortality in Children and Young Adults in Denmark

01/18/2022 | Neurology

Abstract Background and Objectives Mortality is increased in epilepsy, but the important issue is that a proportion of epilepsy-related death is potentially preventable by optimized therapy and therefore needs to be identified. A new systematic classification of epilepsy-related mortality has been suggested to identify these preventable deaths. We applied this classification to an analysis of premature...

Epilepsy Mortality: The Unseen and Unknown

01/18/2022 | Neurology

In this issue of Neurology®, Klovegard et al.1 examine epilepsy mortality using a wide-angle lens, looking beyond sudden unexpected death in epilepsy (SUDEP) to other direct and indirect causes of epilepsy-related deaths. They found that most deaths in children and adults <50 years old were directly or indirectly related to epilepsy. Thus, epilepsy may be the leading...