PAME Conference
The PAME Conference convenes epilepsy researchers, health care providers, non-profit professionals, and people impacted by epilepsy, including the bereaved, to share knowledge and work together to prevent epilepsy mortality. PAME's 2024 conference will be held in Los Angeles, CA, on Thursday, December 5th, and the Family Day will be on Wednesday, December 4th. Registration is now open!
Upcoming Webinars
All stakeholders are welcome to attend free PAME webinars. Most webinars are geared towards PAME’s multiple audiences. While some content might be technical, PAME strives to educate all who are interested. Join PAME for upcoming webinars and stay tuned for new offerings.
What to do after a sudden death in a person with epilepsy?
10/17/2024 | 1:00 pm EST - 2:00 pm EST
Navigating genetic testing, research opportunities, and support services
After a sudden death due to epilepsy, individuals are often left with many unanswered questions. During this webinar, we’ll discuss the death investigation process and provide information on autopsies and brain banking after a death. We’ll learn about genetic testing and the recommendations from the Sudden Death in the Young Registry. We’ll also share resources about bereavement services. Join PAME and our moderator Alison Kukla for a conversation about what to do after a death due to epilepsy. Our three guest speakers are Edana Perry, a mom who will share her personal story of loss and turning her grief into action, Dr. Daniel Atherton a medical examiner who will share his experience with the death investigation process, and Heather MacLeod, a genetic researcher who will share her expertise on genetic testing and the Sudden Death in the Young Registry. This webinar is generously sponsored by LivaNova.View Upcoming Webinars
Past Webinars
PAME launched its webinar series in 2021. To view past recordings and accompanying materials, click here.
View Past Webinars
Past Events
Since 2012, PAME has convened a series of vibrant and diverse meetings with state of art content related to the understanding and prevention of epilepsy mortality.
View Past Events