SUDEP Educational Resources:
- CDC Epilepsy self-management programs
- Toolkit for preventing epilepsy deaths
- Seizure monitor or device
- List of questions to ask health care providers
- Seizure first aid
- 14 questions from caregivers of children living with epilepsy
Important organizations that address SUDEP and offer support:
- CURE Epilepsy
- Danny Did Foundation
- Epilepsy Foundation
- CDC
- Child Neurology Foundation
- Seizure Tracker
Suicide prevention and support resources:
Prevention Resources:
- Suicide Prevention Resource Center
- National Suicide Prevention Hotline: 1-800-273-8255
Support groups and other resources for survivors:
Mental health resources:
- Understanding the connections between mental health and epilepsy: PAME presentations by Dr Madison Berl and Dr Heidi Munger Cleary in “Navigating psychological impacts of Epilepsy”
- The goal of Project UPLIFT is to empower people with epilepsy to improve their own mental health through mindfulness and cognitive-behavioral skills.
Additional resources:
Thank you to the Epilepsy Foundation for compiling these recommendations.