Death Investigators Resources:
Death investigators serve a critical role in advancing research and surveillance on epilepsy mortality. PAME envisions a future where all epilepsy-related deaths are properly certified, for the sake of research, surveillance and for the bereaved families’ knowledge. Below are some helpful resources and initiatives for death investigators. Please continue to check base as these resources are updated.
- ME Position Paper: National Association of Medical Examiners: Recommendations for the Investigation and Certification of Deaths in People with Epilepsy
- North American SUDEP Registry : Information on tissue and DNA donation
- Sudden Death in the Young Case Registry – these tools can be used for anyone investigating sudden death in the young