Events

PAME Conference


The PAME Conference convenes epilepsy researchers, health care providers, non-profit professionals, and people impacted by epilepsy, including the bereaved, to share knowledge and work together to prevent epilepsy mortality. PAME's 2026 meeting will be held in Denver, CO on December 3rd, 2026 with the family session occurring the day before on December 2nd. Please click here for more details!



Upcoming Webinars

All stakeholders are welcome to attend free PAME webinars. Most webinars are geared towards PAME’s multiple audiences. While some content might be technical, PAME strives to educate all who are interested. Join PAME for upcoming webinars and stay tuned for new offerings.

Knowing Matters: How SUDEP Awareness Shapes Parental Grief, Trauma, and Coping

03/26/2026 | 2:00 pm EST - 3:00 pm EST

Based on a recent qualitative study of parents who lost a child to SUDEP, this webinar explores how prior awareness of SUDEP profoundly influences trauma, grief, guilt, and coping after loss. We’ll discuss parents’ lived experiences, the consequences of silence, and why proactive, compassionate SUDEP counseling is essential for families and clinicians alike. Our expert panel includes:
  • Jennifer Sime, Epilepsy Advocate
  • Itay Tokatly Latzer, MD, Director of the Neurostimulation Service at Dana-Dwek Children’s Hospital, Tel Aviv Medical Center
  • Phillip Pearl, MD, Director of Epilepsy and Clinical Neurophysiology, Boston Children's Hospital
Our moderator includes:
  • Alison Kukla, MPH, Senior Advisor for Outreach & Education, PAME
Read the study: https://www.neurology.org/doi/10.1212/WNL.0000000000214623 Read the accompanying editorial: https://www.neurology.org/doi/10.1212/WNL.0000000000214720 Sponsored by Neurelis.

Emerging Excellence in Epilepsy Mortality Research

04/29/2026 | 1:00 pm EST - 2:00 pm EST

At the 2025 PAME Conference, over 100 posters were submitted, with over 50 abstract presenters highlighting emerging ideas in the field. This webinar will feature presentations from the 4 abstract presenters featuring their emerging work in epilepsy mortality research. Their work covers a range of topics, including basic mechanisms and models, neurophysiology, translational research, and SUDEP through a public health lens. All the abstracts can be found on the PAME website (https://pameonline.org/abstracts/). Our panel and abstracts include:
  • Selena Garcia DuBar, Rapid Kindling Model of Seizure Induced Apnea in SUDEP
  • Eduardo Bravo, Increased risk of fatal apnea when the amygdala is stimulated during loss of wakefulness.
  • Anas Reda, Compromised Arousal Circuitry in Temporal Lobe Epilepsy: Potential Neural Substrates of Respiratory Vulnerability
  • Heather MacLeod, Sudden Unexpected Death in Children with Epilepsy/Seizure Disorder: Review of 10 years of SUID and SDY Case Registry Data
Our moderator includes:
  • Gordon Buchanan, MD, PhD, Department of Neurology, University of Iowa Carver College of Medicine
Sponsored by Neurelis.

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Past Webinars

PAME launched its webinar series in 2021. To view past recordings and accompanying materials, click here.

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Past Events

Since 2012, PAME has convened a series of vibrant and diverse meetings with state of art content related to the understanding and prevention of epilepsy mortality.

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