Much of PAME’s work is done through volunteer committees. PAME convenes short term taskforces around specific issues and organizes ongoing committees. New members and ideas are always welcome. Please send inquiries to Alison Kukla. Standing committees include:
The Leadership Committee
The Leadership Committee is representative of its founding partners and constituencies. This group meets regularly to coordinate efforts and ensure progress against PAME’s strategic priorities. It is responsible for overall direction, planning, partnership engagement, committee oversight and fiscal health.
Jeff Buchhalter, MD, PhD, FAAN, FAES
Epilepsy Learning Healthcare System, Pediatric Epilepsy Learning Healthcare System
Beth Dean, MPA, MBA
CEO
CURE Epilepsy
Elizabeth Donner, MD, MSc, FRCPC
Director, Comprehensive Epilepsy Program, The Hospital for Sick Children Michael Bahen Chair in Epilepsy Research Professor, Paediatrics
University of Toronto
Brandy Fureman, PhD
Chief Outcomes Officer
Epilepsy Foundation of America
Alison Kukla, MPH
Senior Advisor, Outreach and Education
Partners Against Mortality in Epilepsy
Gardiner Lapham, RN, MPH
Trustee
BAND Foundation
George Richerson, MD, PhD
Chair, Department of Neurology
Carver College of Medicine, University of Iowa
Tom Stanton, MPS
President
Danny Did Foundation
Wendy Toyama, MBA, FASAE, CAE
Executive Director
American Epilepsy Society
Hannah Whitten
Trustee
Whitten-Newman Foundation
Conference Planning Committee
The Conference Planning Committee is responsible for planning and organizing all aspects of the PAME Conference, with AES providing substantial in-kind logical and administrative support. This group is representative of the lay and professional audiences and actively works to develop engaging meeting content; identify new speakers and expand PAME’s reach.
Click here to see the committee members
Lisa Bateman (Cedars-Sinai)
Gordon Buchanan (University of Iowa)
Jeff Buchhalter (Buchhalter Consulting)
Mary Duffy (Danny Did Foundation)
Alison Kukla (PAME)
Gardiner Lapham (BAND Foundation)
Maureen Slotnick (Epilepsy Foundation of America)
Tom Stanton (Danny Did Foundation)
Robyn Whitney (McMaster)
SUDEP Research & Prevention Committee
The SUDEP Research and Prevention Committee champions the recommendations put forth by the 2020 SUDEP Summit. The Summit’s goal was to identify SUDEP research and prevention priorities in the areas of basic science, clinical action, behavior change and awareness, and public health/epidemiology that would make significant progress against SUDEP.
Click here to see the members of this committee which promotes and monitors the implementation of these recommendations
David Auerbach, Co-Chair (SUNY Upstate)
Dan Friedman, Co-Chair (NYU Langone)
Kristina Simeone, Co-Chair (Creighton University)
Dan Atherton (University of Alabama)
Shawna Benard (USC)
Melanie Boly (UW-Madison)
Gordon Buchanan (University of Iowa)
Jeff Buchhalter (Buchhalter Consulting)
Beth Dean (CURE Epilepsy)
Elizabeth Donner (Sick Kids)
Dan Freedman (University of Texas at Austin)
Brandy Fureman (Epilepsy Foundation of America)
Brian Gehlbach (University of Iowa)
Laura Gould (NYU Langone)
Kim Hindery (Child Neurology Foundation)
Shelley Hutchison (Addison Hutchinson Foundation)
Lori Isom (University of Michigan)
Gardiner Lapham (BAND Foundation)
Nuria Lacuey Lecumberri (UT Houston)
Alison Kukla (PAME)
Laura Lubbers (CURE Epilepsy)
Heather MacLeod (SUID & SDY Case Registry)
Dyke McEwen (University of Michigan)
Rama Maganti (UW-Madison)
Lindsey Morgan (Seattle Children’s Hospital)
William Nobis (Vanderbilt)
George Richerson (University of Iowa)
Rup Sainju (University of Iowa)
Tom Stanton (Danny Did Foundation)
Ian Wenker (University of Virginia)
Robyn Whitney (McMaster Children’s Hospital)
Vicky Whittemore (NINDS)