Knowing Matters: How SUDEP Awareness Shapes Parental Grief, Trauma, and Coping
Based on a recent qualitative study of parents who lost a child to SUDEP, this webinar explores how prior awareness of SUDEP profoundly influences trauma, grief, guilt, and coping after loss. We’ll discuss parents’ lived experiences, the consequences of silence, and why proactive, compassionate SUDEP counseling is essential for families and clinicians alike.
Our expert panel includes:
- Jennifer Sime, Epilepsy Advocate
- Itay Tokatly Latzer, MD, Director of the Neurostimulation Service at Dana-Dwek Children’s Hospital, Tel Aviv Medical Center
- Phillip Pearl, MD, Director of Epilepsy and Clinical Neurophysiology, Boston Children’s Hospital
Our moderator includes:
- Alison Kukla, MPH, Senior Advisor for Outreach & Education, PAME
Read the study: https://www.neurology.org/doi/10.1212/WNL.0000000000214623
Read the accompanying editorial: https://www.neurology.org/doi/10.1212/WNL.0000000000214720
Sponsored by Neurelis.
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