State Interventions to Prevent SUDEP and Other Epilepsy Related Deaths 

Epilepsy is a serious and common brain disorder that can be life threatening. In fact, people with epilepsy have a three times higher risk of early death than the general population. States have an important opportunity to advance awareness and education through legislation that can help prevent SUDEP (Sudden Unexpected Death in Epilepsy) and other epilepsy-associated deaths. Please join us in this webinar discussion to learn about state level policies that have been prioritized by a range of epilepsy stakeholders and about PAME’s new Advocacy Toolkit that seeks to empower advocates across the country interested in protecting people living with epilepsy. In this webinar, we will hear from experts in government affairs and in epilepsy research. We will also hear from one woman who lost her brother to epilepsy and is championing positive change in her state. This webinar is generously supported by UCB, Inc.

Facilitator: Tom Stanton, Danny Did Foundation
Speakers:
  • Laura Lubbers, CURE Epilepsy
  • Liz Collins, G2G Consulting
  • Hannah Whitten, Whitten Newman Foundation

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