Webinars

Navigating genetic testing, research opportunities, and support services

After a sudden death due to epilepsy, individuals are often left with many unanswered questions. During this webinar, we’ll discuss the death investigation process and provide information on autopsies and brain banking after a death. We’ll learn about genetic testing and the recommendations from the Sudden Death in the Young Registry. We’ll also share resources about bereavement services.

Join PAME and our moderator Alison Kukla for a conversation about what to do after a death due to epilepsy. Our three guest speakers are Edana Perry, a mom who will share her personal story of loss and turning her grief into action, Dr. Daniel Atherton a medical examiner who will share his experience with the death investigation process, and Heather MacLeod, a genetic researcher who will share her expertise on genetic testing and the Sudden Death in the Young Registry. This webinar is generously sponsored by LivaNova.